The Butterfly Fund
"helping children who are at the moment, fragile as butterflies
Laurie & Michael Sterner started The Butterfly Fund in 2008.
It started out as a small organization that wanted to help children that suffered from a very rare skin disorder called Epidermolysis Bullosa, also known as EB.
Laurie and Michael were not personally affected with a child with this disorder, but they fell in love with the children and the families affected by this disorder. After realizing there was not enough awareness or care for the children who suffered from EB, they wanted to do more. Both Laurie & Michael worked for various other non profits, but they knew their organization could be run with love and care, something they didn't see enough of in other organizations.
So in Feb 2011, The Butterfly Fund became an official 501c3 non profit.
Laurie and Michael expanded their mission to help any child in the US, age 0-18, who was faced with a catastrophic, life altering medical condition or event.
The reason for the name?
Children with EB are known as Butterfly Children because their skin is as fragile as
a butterflies wings.
They felt every child in the Fund was fragile. just like a BUTTERFLY